the years and through a variety of observations, I have come to
realise that there are varying degrees of being relaxed, and because
my body is in a constant state of flux, sometimes, it requires some
purposeful help to keep itself wholly in tune with its self.
term, 'Relax the muscles and try and get some rest' is to instruct my
muscles, that are generally used during and for mobility, to behave
in an inactive state or sleep (a restful stillness). This specific
action, as I understand it, requires the dispersion of acetylcholine
in specific muscle tissues to occur, in a particular and balanced
order, until the muscle becomes extremely still, and in a quiet
steadiness relative to its function and my overall posture.
to this, I find there is the situation of 'relative stillness,' as in
the activity of muscles to achieve a steadiness in muscle control.
For example, the semi relaxed state of my left hand fingers and thumb
holding the needle steady enough to receive the thread from a more
active right hand. In this situation, the muscles are burning more
energy in a finely controlled semi relaxed state. The Activity in the
muscles of my steadied hand are finely measured cyclic ones,
occurring within the Sarcomere of the muscle tissues involved, all
working in harmony to maintain the desired stillness within. So
infinitely balanced in operation (for such a light weight task), the
cyclic motions within, are almost to the point of slipping into full
relaxation; or slipping in and out of it, depending upon the muscle
tone of the muscles in concern.
fact, during my early teens, a fellow pupil at school, noticed I had
an apparent, very rapid, yet minute fluttering in my fingers during
the 'semi relaxed state' of fine motored control, while for instance
lightly holding a pen steady in handwriting. As I now see it, an
inability for my body to maintain that smooth balancing act or
evenness, in the fine control of what I call, the Inner Cyclic
Motions (ICM); The cycle in; ignition, burn, dispersion and uptake,
within the cells of the muscles used for movement in mobility. Which
I hasten to add, varied on a daily basis with good and bad days; and
as this aspect had no really noticeable consequence then, I just
considered it a natural personal attribute and got on with the
excitement of being alive.
this imbalance in Essential Tremor, was of an adolescent 'over-burn'
or 'inertness' within my muscle tissues due to hormonal changes is
open to debate. However, over time, I have come to realise that there
is a more noticeable peculiarity in recognising the pivot in
neurological transition, or the intensities of, what I term as being,
the Relax Datum (RD). The sense felt between the semi relaxed and
totally relaxed states in being within individual muscles; which is
now becoming an increasingly important aspect in later life. And I
have to ask myself, whether the apparent fluctuation or irregularity
between the ICM rhythms was the first signal, that without certain
due care and attention, there may be trouble ahead.
give you more of an idea into the aspects I am trying to relate: At
the age of four years, I had the strength to prise up and lift a very
heavy wrought iron grill my father had been unable to shift, by
utilising the inertia of thrust, generated by speeding up the
ignition and burn aspect in ICM. While fifty plus years later, energy
levels are fading without sufficient Dopamine, while the Relax Datum
is also waning. And of course, without this faint RD, evaluating or
monitoring, towards achieving the varying degrees in necessary
relaxation for smooth action becomes increasingly more blurred. Which
in turn, inhibits my ease in the control of mobility while also
affecting the depths of physical sleep.
a way it is rather comical, when my Physiotherapist states that I
must try and relax a particular muscle; I reply I have; while the
burning tension remains to be eventually teased away by massage. What
is happening here? The brain is saying, I have done all I can to
relax, while the muscle is telling a completely different story. What
on earth is causing this apparent inability toward relaxation? Or
perhaps more importantly, can I identify the real root cause for this
phenomena to be occurring, to the point in enabling some corrective
further effort in understanding the bigger picture, there is another
observation that may have some relevance to or upon this issue in
muscle control. For wants in my condition, now diagnosed as
Parkinson's Disease, along with a deformity in Spinal stenosis
(bearing in mind the 'chicken and egg' scenario of which came first)
I have at times encountered a pattern of instant change in the ease
to my mobility and gait, by simply wearing a back support for a short
period of time.
more detail; When muscles in the lower back as hard as nails, having
adopted what may be a protective stance (to the aspect in stenosis),
partially disabling the ICM to instinctively prevent further injury
to the spine and additional squeezing upon the central nerve; My
stride in walk turns into a penguin like shuffle, and by simply
providing additional support the ability to stride automatically
returns. Put more simply; With the support on, there is a ground
swell in relax datum (RD) to a pitch or strength that enables a
larger or increased amounts in movement.
underlines the forever fluctuating relationship of the RD and its
pivotal role, that exists within cells, the Sarcomere and
collectively in every muscle. The muscles used for skeletal support
and mobility are governed by both involuntary (subconscious) and
voluntary (conscious) synapse in ICM; Not only responsive to task, as
in when the loads the muscles carry are varied, but responsive to the
physical condition and health of the collective adjacent areas.
the momentary aspect in each cell stroking this pivotal point and the
pitch of the RD, appears to me, as being as critical as the sense of
touch; A key to, and in, providing the necessary data upon status,
timing and conditions as they work in unison. And when not in
harmonious unison due to injury or ills like PD, there can be a whole
lot of pain, discomfort and disability.
side this; Through the course of time with Parkinson's' Disease, I
have come to understand the apparent development of stored pockets,
groups of Sarcomere, stocking 'Ready' (strings of acetylcholine
excitable cells) and 'Spent' (strings of inert cells withholding
toxic proteins), where the necessary ICM patterns have changed or
temporarily ceased in activity, actively locking up as a clump or
small groups. And while mobility can still occur around these smaller
inactive areas, it temporarily becomes impossible for the whole
muscle to go through the complete cycle in processes in complete
comfort, and or to completely relax in full on its own accord however
hard I try.
that, when these pockets assemble and reoccur in one specific area or
another, in unrecordable levels of activity or relative inactivity
within regions, being in the nature of an 'indirect injury' (rather
than an injury that can be felt due to impact) there can often be, a
tendency toward latent reactions. For instance, if large areas or
strings of stored up 'Ready sarcomere' are suddenly triggered by a
single cell passing Go as the inert protein moves, stroking the RD as
it were, on its path in excretion, the result can become like an
almighty power surge, an almost electric current, a rush of
increasing intense energy. Gaining momentum and force on route,
resulting in; An intense involuntary movement or shake of a limb, or
a hefty thump to the brain, to possibly cause further physical damage
within the Central nervous system.
once my PD had developed to diagnosable proportion, the build up of
muscle tension from banks of 'Spent or inert sarcomere' holding on to
unwanted proteins for long periods have I believe, provided the
regional changes in posture and gait, cause for the movement synapse
to falter and fail, in a tremor, spasm, cramp, and across groups of
muscles the freeze in mobility and the occasional fall.
are obviously some peculiar aspects at work here, that appear to be
once again, directly connected to or centred around the RD and or its
relative pitch; In co-response to its environment and the direct
relationship to both involuntary and voluntary Inner Cyclic Motions
(ICM) coexisting within the individual and collective group of cell
tissues. A complex duality (or multiples therein, as I'm no
scientist) simultaneously utilising the same elements; where the
dominant behaviour aspects can change or be changed. A duality that
when out of sync, may as it appears, just tip the scales the wrong
further on these lines; In general comparison, there is a stark
difference between the voluntary movement of the limbs and the
involuntary movement of many of the organs, bearing in mind their
Primary roles in function, beyond, the controllable aspect of
conscious thought, and the repeating patterns in behaviour or
unconscious instruction (which actually occurs in all living cells in
the body); namely the sense of feeling, the inner spark of the RD's
tense in pitch.
brings me to another thought: In Idiopathic Parkinson's Disease, is
the Substantia Nigra
being systematically tricked because the pitch of some
muscular RD have become too faint or indistinctly blurred? Tricked to
the point, of no longer being excited sufficiently to produce the
continuing, further, dopamine triggers for groups of Sarcomere in
specific muscles at a specific moment in mode. A chain of reaction
leading to broken links, that induces anomalies to perpetuate cause
for the break up of more links in subsequent ICM reaction.
honouring that I believe the initial root cause of Idiopathic
Parkinson's Disease, may be from a combination of things (rather than
being triggered by an individual reaction to an agent infection). I
can well imagine that a “semi relaxed stating RD” within muscles,
could easily become an adopted new norm for “a being relaxed RD,”
to the extent, that adjustments in the provision and levels of
Dopamine would no longer be regulated, in a corresponding manner as
previously suited to bodily needs and functioning; leading to the
eventual decline (inevitable reduction or 'cell count') of those
enabled in producing Dopamine.
thinking and reasoning behind a possible cause for such a scenario
being for example: Toxins not readily moving from cells, due to a
virus, and or, the damaged and hardened Lymphatic vessels (from
injuries that have not been massaged and treated during the “healing
process”) remaining in a fatigued like state, almost frozen in
their bruised structure, and accordingly, continually slowing down
the flow and passage of Lymph.
surmise, such an aspect would act like a brake, immediately altering
the RD's momentum in pitch and in turn, altering the ICM rhythm in
muscle tissue, because unwanted proteins remain in the Sarcomere
tissues for a prolonged period relative to what should be. This to my
mind, bodes in the aspect of being more noticeable in the “dulled
get up and go, and heavy after affect,” following a good session of
Exercising; Which, sort of fits in with my description of PD being,
'as if the body is ageing before one's time.'
once PD has triggered muscular spasm and contraction cramps, I fear,
both Lymph vessels and Nerve fibres can come under immense pressures,
causing further ongoing problems and damage! The sad often depressing
downward spiral in progression.
back to the early years, I recall quite long periods when groin lymph
nodes became like hardened peas, and although the doctor at that
point put this down to probably being hormonal, I still wonder upon
this aspect, particularly as one side often felt quite normal whilst
the other showed signs of being under strain. With a bias to poor
circulation in the Lymphatic vessels where perhaps the right-hand
limb had naturally taken a greater load in knocks and bruising.
Indeed, since schooldays, relaxing my right leg (into the floppy limb
mode) has always taken far longer than the rest of my body.
the occasions or bouts of leg jerks and Restless Leg Syndrome (on and
off since my early twenties) have on the whole been that same
Right-side bias and the Parkinson's Disease primarily effected this
towards further exploration into the fathoms of PD, and as to how and
why I developed or inherited this awful disposition. It often crosses
my mind to increase the self searching and the projection in thoughts
upon past observations. I'm looking for patterns or links (that at
the time may have appeared totally unconnected) towards establishing
a plausible Theory; A theory that may then lead to a roadmap,
determining practical ways forward, towards reversing or combating
the problem once and for all.
essence I hope that this search for patterns and common denominators
may narrow things down towards helping to overcome the cruel bounds
in disabilities PD brings. I want to find that magic key that will
allow me to manage the situation and turn it on its head; After all,
to my way of thinking the “Chicken and Egg scenario” points
towards cyclic patterns in Nature and no aspect can be ignored.
instance, the Essential Tremor brought to my attention by a fellow
pupil, while not considered a consequence of PD may be a contributing
factor towards the development of PD in later life.
may also be a big contributing factor when I think about how very
early on in our lives, we are disciplined into becoming control
avoid disruption in classrooms, infants are encouraged and forced to
suppress any natural urges for number one and twos, in not being
allowed to go to the toilet until specific Break-times. Indeed, in
the art of becoming “potty trained” we swiftly master ability in
self control, so that we do not mess in our pants!
top of this, we develop within social frameworks designed to
encourage active and the most productive lives as individually
possible; and this competitive drive in spirit, even spills over into
our leisure time; I'll wait until I have scored the winning goal,
wait for this video to end, or until we have finished chatting
have come to realise, that over the years I have been, continually
exercising levels in control over groups of muscles that are
naturally meant to be continually proactive in involuntary movements
and variable rhythms (depending upon the intestinal environment and
types of food that has been processed further upstream).
for want of an expression, “I have been habitually suppressing and
interfering with the very valuable involuntary movement of the
Intestine and Colon!” After all, how often in acts of politeness,
do we suppress the urge to break wind at the dining table or when in
the company of others in public. Bottoms up! There is little or no
emphasis in training ourselves, on how to reverse any ill effect that
such conditional behaviour may bring.
coming from a large family were daily life patterns were regimented
in waiting for your turn, the control in overriding calls of nature,
would then often be overtaken by my very enthusiastic nature to
discover the joys of life, with little time for rest and relief,
until it was forced upon me.
sure, there is a time and a place for everything, but what is the
cost?; If we cannot re-engage the Natural processes within the gut in
Full; Due to, a regional drop in temperature through lean activity, a
Virus and or noxious bacteria passing through, or even a failure to
relax a specific region sufficiently after a forced expulsion, so
that Natural rhythms resume wholly throughout.
I'm alright Jack, I go as regular as clockwork!” Well am I? If I
am eating and exercising on a regular basis, the gut movement could
simply be one predominately regulated upon the volume in mass! And
not necessarily including; All the various Involuntary movements
being triggered in the right places, at the right time, according to
the dietary intake (food type) and uptakes, in all the regional
biochemical processing along route. I have come to the conclusion
that, a wholly regimented lifestyle may not necessarily be good for
me, especially during Autumn when environments are constantly under
siege from volleys of new outbreaks in rapidly mutating germs.
back to the aspect of RD intensity; I wonder upon the possible aspect
of any inbuilt conditioning or bent in self control and or intestinal
infections, causing involuntary movements to totally alter in their
pattern and rhythm. Perhaps sections holding almost steady through an
'applied semi relaxed RD,' rather than total relaxation in their
normal involuntary cyclic rhythms.
other words, through 'taking control' or gastric infection, the RD
changes, altering the Natural bio-rhythm, by recoding the Involuntary
synapse cycles with the cycle RD timing utilised in fine motor
control. Whereby, dietary fibre and waste products have effectively
been slowed down significantly enough to have a direct knock on
effect, with additional folded or Imprinted proteins being enabled to
cross the blood brain barrier, effectively flooding the central
nerve. And moreover, through their footprint in RD recoding, they are
then targeted for the Substantia Nigra area associated with concious
motor transmission; Where there may then be, or develop, inabilities
and abnormalities to deal with or regularise the situation of floods.
extremes, I know too well, how PD can create new dimensions within
the Brain and Central nervous system! Like those seen in Sleep
Behaviour Disorder (RBD), where the normally concious movements of
Awake, are triggered involuntarily during sleep. Which perhaps, again
confirms this apparent add-on reassignment or recoding aspect in
neurological transmission, to exasperate the whole situation in
adding more fuel to the hell fires, progression in PD.
not very scientific in the theorising of my observations, I consider
the whole motor process in mobility and involuntary movement ICM to
synapse, as having five stages; Relax Datum, Refuelling, Ignition,
Burn, and Exhaust dispersal. Five points where imbalances may occur
and have an affect upon the subsequent momentum in function; Noting
that the Relax Datum's duality may affect measure upon Refuelling,
the intensity of Ignition, and the subsequent RD intensities as the
process is cyclic; While, the speed in Exhaust dispersal may affect
the efficiency of Refuelling on account of, available space and the
molecular connect-ability becoming available within each cell.
is hardly surprising that finding a single Cure for Parkinson's
Disease, appears very improbable to my mind's eye, with such complex
variables at play. Even before you start thinking upon all the other
possible variants, like each Individual's genetic bent and the
genetic mutations that may or may not occur through various viral,
and or bacterial infections, or lacks in immunities from not having
been breast fed, or the exposure to toxins when the body was unable
to cope with them in one way or another. Finding a single nomad in
amongst a million and one reasons, appears to be a mission
not. Let us not forget, that instinctive willing spirit for survival,
and the inbuilt mechanisms towards bodily repair. If I have
inadvertently contributed to the condition in PD, then there could be
paths forward to readdress some of the imbalances associated with
to lifestyle that keep me more in touch and mentally in tune with my
body, Assistance through targeted Massage and Exercises correcting
and resetting all the rogue RD intensities and patterns, in ways that
I can hopefully then maintain myself, in readiness for the
Individually tailored prescribed medical intervention that I may
still require. For I have a feeling, that once I am enabled to manage
PD (rather than PD perpetually bullying me) there will be a more
precise means towards total eradication, as more potential forms in
treatment come into being.
trying to assemble a road map out of all this knowledge and theory, I
have to ask whether the movements in Dyskinesiamaterialise
in, or point to areas of damage; in the same way that I can associate
areas of previous injury and physical deformity of the spine as being
of significance. i.e. I tend to know very quickly when the stenosis
is affecting posture and gait while also causing levels of Sciatica.
my experience, one aspect evidentially apparent, is that the targeted
Massage to my lower back prior to Exercise sessions, physically
extends the length of the On time and shortens the period of the Off
time; to the extent that I can actually feel better, taking a lower
daily dose in medications. For when I am more relaxed in the
troublesome back muscles, 100mg may last up to 5 hours instead of
3+hours! And I have to wonder upon this aspect, as being similar to
my medication, in effectively assisting in slowing down the
progression of PD.
to this, there is another area I certainly feel may well be more
directly connected to Parkinson's Disease in regard to the lacks of
Dopamine neurotransmitters. Back along, I experimented with a
home-made Herbal remedy (BocowoA)
but failed to get the initial very apparent sense of
increased dopamine (Which was strong enough for me to stop all
medication for a brief period) on the second test trial. While very
disappointed by this failure to make further inroads, I have still
pondered upon the actualities that made me surmise that I was on to
something. I even considered the fact in brisk walking causing this
effect, but while making things momentarily easier, there has not
been that sustained sense in getting anywhere near to how I was
feeling first time around.
from this, by way of the unrelated observation in dog behaviour,
namely, their occasions to 'back-digging with their hind legs
followed by the spine shake,' my predicaments and the pelvic tingle I
felt at the beginning of the BocowoA trial, online research, and more
recently following Massage therapy. I am beginning to ponder more
upon the RD intensities of the muscles that line the pelvic region,
and more particularly the flexibility of the Sacrum region allowing
uninterrupted ICM throughout, and indeed, the overall neurological
contributions therein. Time I guess for more targeted massage and
exercises, to see what role or difference can develop, as I continue
with the battle.
after writing this article, I am even more determined to develop new
Exercises and techniques, directed by and with my Masseur
reset the RD pitch as evenly as they should be throughout the various
muscle tissues, enabling more ease to relaxing the whole body, and
Because of the interplay of Dopamine in movement, exercise and the
necessitation of achieving intensity in RD pitch, the timing of
Massage and Exercises is very important in relation to any Le-dopa
medication; Accordingly, for maximum benefit aim for the peak times
in the Le-dopa arc.
I hope that Relax Datum (RD) is adopted by the Medical Proff' using a RD Score 0 to 5
This would be beneficial in both diagnosis of nerve damage and dispositions. Plus a good way to determine how an injury or ill has healed inside etc.
Help rid, speed up the movement of toxins from vour body (toxins peculiar to your situation) and you are half way TENS and heat treatments may ease some tension but physical Massage is the only thing that appears to work. :)
I write from first hand
experience and my understanding according to my personal situation,
following an almost sleepless night; Due to the onslaught of
extensive muscle cramping and clamp down within the Back, with
additional spasms, involuntary pulsations and painful discomfort
extending into the limbs (now including my left-hand side) which
in-turn has affected my posture, gait and general mobility.
Since trying to find a
new Masseur Kinésithérapeute (following the retirement of the
therapeutic experienced and expert hands that have looked after me
over the last nine years) has initially turned out to be a very
painful ordeal; and being the second time round that I have had 'bad
experience at new hands' it really makes me wonder upon the levels in
shared knowledge and understanding within this field in relation to
There has to be a
simple reason as to why some Clinics have failed to work wonders,
while others have not only alleviated my specific problems but also
extended muscular vitality and general mobility; even to the point
where a recommendation towards surgery and the need to wear a Back
support on a daily basis has in the past been overcome.
In short, being set a
series of exercises without any initial hands on examination and
assessment into the physical condition of the individual back
muscles, has not only exasperated but extended the problems
associated with the muscle tissues prone to and already under
unprecedented tension with the inherent cramping that is noticeably
specific to my condition in Parkinson's Disease, and the physical
permanent injury to the spine; that in combination, act upon the
Sciatic nerves, subsequent posture, causing pains in the lower-back,
across the upper pelvis and into the right hip, etc.
By way in analogy; A
football player, having to take all the penalty shots with an injured
ankle will suffer progressing agony; no doubt extending the size of
his injury (while increasing the time necessary to attain any measure
in healing comfort) the more shots he takes in that effort to win the
grand final game; The affected areas increase as the measure of
Disease the fact of the matter is that some of the muscles are and or
will become physically damaged; There is Injury! Injury that needs
and requires full attention in therapeutic treatment first, before
Each and every muscle
requires a good measure in equability and sufficient muscle tone to
enable a smooth comfortable and balanced functioning that combine in
providing good health and mobility.
The old saying “Rub
it better” rings very true; For gentle massage appears to be the
only thing that really revitalises and improves the circulation
within the muscle tissues towards achieving optimum muscle tone prior
to any useful exercise.
In my experience the
action of massage is like a gentle warm up session; while applied
heat treatments and or transcutaneous
electrical nerve stimulation (TENS) most certainly do not dislodge or shift
any unwanted matter that has built up as a result of the contraction
and tensions. In fact, to my knowledge, there are no short cuts that
Disease, it is very much a hands on aspect before you start any
stretching and or exercise; And if you cannot massage an area
yourself to attain a good or balanced muscle tone then be kind to
yourself and insist that the individual points of imbalance are
addressed first, before you take the dog for its walk or stand at the
sink to wash the dishes
I am just so upset. Having gone from being supple enough to climb ladders and carry out easy tasks ; To shuffling around lie a duck with painful immobility in a matter of a few hours!!
That upset to say that, some of the physiotherapsts I have seen need to retrain!
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