A little in beaux reflets

Streams of light dance in every direction, refracting and reflecting, to illuminate a colourful living planet.

Providing moments to be captured and recorded through the art of photography.



Saturday, June 29, 2013

Tail for success?



How I hoped that I could have written: With only mild symptoms of feeble tremor and a gentle finger wobble left (which appear to be speedily fading in their intensity as the nerves continue to sort themselves out) it looks as if BocowoA has done the job. The nightmare ill that crept up over forty plus years looks and feels as if it has vanished completely. But alas, such a conclusion is painfully eluding me right now, and is literally a pain in the butt.

Yet all is not lost, and a lot of thought has been spent trying to understand the full depth of Parkinson’s Disease, as I accepted to return in taking the prescribed medication in Levadopa once more.

Having felt to have been nearly there, this set back seems acceptable, upon reasoning all the other injuries that have been revisited as the nerve ways have been reactivated and or opened up.

The level in pain around the Sacrum and Coccyx area is very intense and penetrating at the line of each fusing, with perhaps the apparent heavy drain upon the natural Dopamine levels being partially due to the proximity of the central nerve.

In fact, I am rather glad it has happened in a way; As through all the pain and bodily responses, I am beginning to think that this particular area in the body, may well be the one common link to kick starting Parkinson’s Disease.

After all; How many babies totter and bump their bums when taking their first steps, to jar the Coccyx on a stone or unforgiving surface causing damage to the central and surrounding nerves, just at the time when bones are hardening and fuse lines are firming up the pelvis frame for the standing posture. Then to top it all, it is so much fun, to go Bump Bump down the stairs.

And the apparent rise in these types of disorders, is perhaps just a reflection of modern day living.

Further and in way of an interesting observation; I have seen dogs with cropped tails suffering from trembles and leg shudders as they get older and a Breton Spaniel with Epilepsy, that shook uncontrollably in fits, if it had not had its medication.

I guess dogs need the weight of a wagging tail to help keep their pelvis, central nerve and brain in tip top shape.

Which may add further weight to my belief that the Sacrum and Coccyx area is most relevant for many situations in PD.

 

While My Back Was Turned



Things all felt so good, with so much recovery of the nervous system regarding the increased sense of feeling, to the point that I attempted to wean myself off the prescribed medication (thinking that the residual gentle arm and finger twitching would fade, once the rise in natural dopamine peaked) and I have to say, initially everything seemed to be going very well.

I enjoyed the freedom of being totally free from taking any synthetic medicines for over 25 days, with continued improvement in progress, as the finger tips and toes appear to be so much more alive. My skin tone has become more elastic, and without doubt the speed of colour returning to depressed fingernails (as soon as the nail is released) is instantaneous once more.

Thinking success was very near I even increased the time spans between taking BocowoA and then the thing I did not want to happen appeared to be happening. My big experiment seemed to be about to collapse as the tremors and some lethargic movement started to creep back into the days.

Once the reality of an apparent failure tumbled into my thoughts, I revisited my daily notes, in readiness to consider throwing in the towel if necessary. However, I soon realised there had been a positive twist in the recent events.

While more nerves were opening up within the pelvic area, I had felt that there was still a dull area at the base of my spine effecting the sciatic nerve, and accordingly, I asked my physiotherapist to stretch my spine towards making it more comfortable. In hind sight, I also realised, that perhaps my enthusiasm from the vast improvements following each spark up, had propelled me; I was trying to run before learning to walk. And of course I had not bargained upon any other effects from the procedure, of stretching the spine.

Indeed, I had increased my intake of BocowoA just before my back was physically rotated by the Kinésithérapeute, which surprisingly resulted in more nerves than expected (or I had previously not known about) coming alive in the Sacrum and Coccyx area. For the first time in my life, the pelvic girdle felt that it was made up of more than one fused part. To surmise, I guess (as the Parkinson’s symptoms returned) it spelt out; that there was now insufficient Dopamine available in reserve for such a need, especially as this area still remains painful at times.

A day or two later after more physiotherapy, a synapse rush up the spine from the damaged lumber vertebra (as I dozed before sleep) confirmed that a return to prescribed Levadopa was now necessary for the time being, or at least until the balance is re-struck and all the nerve ways possible have opened up.

Of course, I still do not know whether I have found a cure by introducing BocowoA into my diet, but the apparent depth and continuing ‘waking up’ of the various areas in damaged tissue, appear to still point toward a general overall improvement.

While my right arm (that shows the most tremor when it occurs) having taken the brunt of many a hard knock, a wrench or two, and a couple of nasty breaks, will likely be the last to heal.

 

Confusion and Control



I can only write from experience; Having gained so much of my collapsed nervous system back using BocowoA, and with what looks to me like the possibility of real hope on the horizon, I can honestly say, I can appreciate the dilemma of both Carers and Doctors who attend those with neurological disorders like Parkinson’s Disease.

For the Carers, one of the hardest things to deal with, is the periodic mental fallout or displacement a person with Parkinson’s is physically having to cope with; as their brain decides what parts of the remaining nervous system are vital, while also coping with any unwanted effects from any medication they may be taking. There is little that can be done beyond being there caring for the patient; understanding that it is simply a natural thing for the nervous system to re wire itself and these situations in mental disorientation to occur.

For the Doctors, the fact that they have to choose whether to treat the mental disorientation, or the physical Motor aspects that come with Parkinson’s as the main priority, is one hell of a challenge. Especially as some of the drugs for mental disorientation and anxiety, will likely add to the patient's mobility problems and visa versa.

Sadly (but understandable) the separation between body ailments and mental welfare through departmental separation can often cause more distress, especially when the tell tale signs of Parkinson’s are insufficient for diagnosis. That said, a good doctor should be able to realise what is amiss if they observe the effects of medications while listening to what their patient is saying about their own physical situation within.

Worst of all, for all parties concerned, what is going on inside a patient’s body is not necessarily visible as an external point in difference, leading to misinterpretations in understanding and even more stress for all. After all, there is nothing worse than the aspect in being pigeon holed by a misguided or uninformed mind by way of an incorrect stereotyping.

Yes, there may be times of hallucination for those suffering with Parkinson’s Disease, where the unconscious dream world is embroiled within the conscious state of daytime. Even panic attacks when family, friends or associates become the fictitious foe, but the unnameable aspects in dream always remain anonymous within the muddle of the known, and surmising variables bears no fruit for anyone.

The fact of the matter is simply understandable and thankfully not an aspect to contend with when the nervous system is being increasingly restored. When things are too hot you drop them, and when you can no longer hold such hot items for a similar length in time something has changed.

The immediate, almost instant effects from BocowoA, in switching the Peripheral nervous system back to On was breath taking and very lifting as the wave of a renewed intensified sense of touch took over. Although it must be said, that with so much of the nervous system under the stress and strain of Parkinson’s Disease, and the rush of the day, it is very hard for an observer to notice the immediate physical changes. For while the weakened one sided aspect levelled up within the first forty-eight hours, there is little way to prove that you are not simply applying more pressure in the greeting handshake, or indeed that a cup was simply more hotter than usual.



Yet, BocowoA has transformed everything for me, to the point of (while being a smoker of tobacco) being able to now taste the moisture flavours in the air, and when my back was turned to stretch the spine, increasing numbers of nerve ways came alive!

More importantly to my mind, it is its ability, to switch On the redundant nerve cells that really provides some solid hope and a truer ability in control. Which makes me ask; If BocowoA can awaken numb areas in my arm, can it do the same for others who have lost feeling and control in their limbs?

 

Sunday, June 16, 2013

BocowoA's Bite



With pain at the base of the spine and spanning the inner wall of the pelvis, I am taken right back to an accident in my childhood, when a large section of prefabricated wall came crashing down on me. I had been assisting in holding large two and a half metre tall, board and concrete panels (used for 1960 prefab homes) in a vertical position ready for cleat bolting to the beams, when one had tipped beyond the holding point in balance. Knowing my speed could not match the toppling wall, my sixth sense put me into a ball, with my head planted to my knees, and my tail end up to face the oncoming whack!

The apparent end result at that time, was no broken bones and after a ‘chill spray’ to the area of inflammation, I was bed ridden for a week or two on painkillers, until I felt well enough to be up and about. While a more recent scan highlighted, that a vertebra in this region has a smaller channel where the central nerve passes through, which no doubt acts to restrict or bottle neck the synapse in a traffic jamb like scenario. The damage from the bash may well have contributed to hinder normal growth within the vertebra through the physical force of the blow. By separating or distorting the molecules sufficiently, and or a concentrated influx of protection fluid, for the growth hormones to no longer be able to make the right bonds.

 
Observing the return to a similar pattern and freshness in the pain, within the specific pelvis area in question after all this time (when I have not had a further whack or aggravation to the area, and I have been taking things relatively easy) is rather interesting.

If it was due to the exercises I have been doing, or indeed any muscular straining; then it would have reoccurred often over the years. Indeed, I can recall (a more recent) similar intensity in pain that ran through the Sciatic nerves, between the spine and entry points to the pelvis area (which led to a MRI scan of the lower spine to assess the condition of discs and highlighted the pinching of nerves) but the area in concern now, is much lower and within the pelvis, with a more lateral rather than radial feel to it.

As with other recent pain, it was preceded by the refreshing ‘spark ups’ and fluid trickling sensations in that area, leading me to believe that, a previous shut down of nerve fibres may have caused areas to be held in a state of ‘numbed animated suspension.’

While it seems strange to be describing these events in such way, it is exactly how they appear to occur, in making me ask. Can muscles have a biologically built in memory, that can in turn be switched back on in such a manner?

The only way I can fathom such an aspect as being a possibility in reality, is if the cells in the nervous system have a quadology or doubled duality, that work in a cyclic motion. Where two signal types, the Go and Return, plus two or more Controllers (governing and recording intensities of the signals, hard and soft, hot and cold and all the degrees between) exist in every cell.

This then gives way to the possibility that a single distortion in biochemistry, can cause an array of situations that eventually build into an undesired progression in disorder.

In such a scenario, I can also envisage that, when a nerve way eventually shuts down, the natural biological inclination for survival, will most likely engage the body in swapping or diverting the signal's synapse routes, so the essentials of heart, lungs and brain still function to the best available potential. While the effects of, motor freeze ups and tremors, may be caused by this aspect in re-routing now being along a shared nerve way, with the most dominant synapse being that on display. And in the brain, the temporary effect of re-routing, is the most likely cause of things like hallucination and natural anxieties brought on by the neurological losses, with that stress creating further stress.

Like wise, in the case of the areas of nerve tissue, that effectively closed down (almost completely) in the flux of ‘partially healed’ injuries. The residues that scribe pain may then naturally start up again as soon as those nerve cells are reactivated; and indeed utilise necessary, increased amounts of dopamine during subsequent repair and recovery process. The latter aspect, explaining the apparent one step back two steps forward progress I am experiencing.

Looking at the overall symptoms, the prolonged muscle tension, the undetectable nature in the early stages of the disease, and now, this apparent return to some unfinished business in healing, I am beginning to think that the initial missing link or thwarted synapse is two fold (in reporting via contact and in firing up the next synapse) and in Parkinson’s, the Returning signal’s inability to function properly in their normal circuitry (to the point where the circuit then no longer functions) is the primary problem. And it is only when these synapse mechanisms, take the easier route and starts to utilise the Go circuitry, that the tell tale symptoms for the diagnosis of the disease really start to show.

Based on the little I learned in school boy Biology upon the cyclic aspect observed within an amoeba, to the aspect in ‘a collective body in movement’ seen in a flock of starlings or shoals of fish, and my understanding through direct experience and the relative order of areas as they heal, I am inclined to believe that the missing biochemical link, is in my case, related to the tail rather than the start of the cycles in synapse. Plus the aspect in Destructive Pulse Syndrome from partially healed or scar tissues of physical injury, also plays its part in this neurological disorder. https://sites.google.com/site/beauxreflets/dps 

This theory in simplistic analysis and point of view, appears to fit in with all that I have experienced through my condition in Parkinson’s Disease, from the first signs of nerve cell incapacity to the apparent recovery process after using BocowoA.

I have been ‘blown away’ by the effects of BocowoA. From the first flush of better health returning, with the weaker side improving to balance things up, and the increases in the senses all round (within the first 48 hours). The tickling sensations of the face and mouth (associated to the surges up the spine in the 1980’s that caused the mouth and head to buzz as if I was having a fit). The huge increase in lung capacity, the increased sense in feelings to the inner surface of the cranium and scalp, the spark ups and crawlers in the back and limbs, plus the feeling returning to numb areas in the arm; With the ongoing pattern of things, now all pointing towards, being in the process of healing.

The list of gains keep coming, one after another (as I now fully realise the enormity of previous losses); While the only biological loss since starting the experiment, is a 'milk tooth' that (after over 50 years in service) loosened when biting on a piece of bread.

Having had times (recently) when there are no tremors whatsoever, and with the intense sense that the Parkinson’s has lifted, I am beginning to get very excited.

Although, some tremor has (temporarily it seems) returned in the apparent recent re-routing, I can now physically locate the various very small pockets in ‘previous physical injury’ that remain; which in turn tells me that; While I may have to screech round a few more hairpin bends, the home straight may well and truly be, just around the next corner.

 

Tuesday, June 11, 2013

Sit Ups and BocowoA



At the last session of French Physiotherapy with my Masseur Kinésithérapeute, the changes were plain to see. I could feel the complete changes in muscle tone in my abdomen, legs and arms. The ‘spark ups’ have given new life to the muscle fibres

When describing Parkinson’s to family, I would say; It was like growing old fast when you are far too young. Everything is as though one half of ‘being alive’ has been swept out from under your skin. Now I am pleased to be saying that that lost youthfulness (all be it very painful at times) is returning in leaps and bounds.

Walking the last few days has at times been very awkward to say the least, but the cowboy legs and hip sway have gone, while I am getting used to where the feet will be as I tread, adapting with the constantly adjusting gait, generally improving posture, and the occasional numb buttock (Sciatica due to a spine injury in my teens) and a fair wind.

Taking care of the spine plays an important part in daily thoughts, and when the back muscles are not in balance, I readily straighten and stretch my spine with some floor exercises, https://sites.google.com/site/beauxreflets/keep-fit

I am becoming more convinced by the observation I recorded in the Coprinus fungi family, that a tiny tweak to the biochemistry changes everything. As a down rolling spitting mushroom evolves into a more dry umbrella ink cap that opens in the opposite direction; A tweak to the amino acids in the nerve cells will alter both capability and function.

Eating BocowoA just on the occasions when I need the boost (having already faded out the synthetic Levadopa completely) appears to be working exceedingly well, provided there is sufficient water on board. Through all the changes (from the initial revitalising gut sensation onwards) to each arrival at a new stage or plateau, it is clear that Natural Dopamine is being produced and retained. Added to which, I now appear to have a measure in control that allows me some choice to govern the speed in this apparent rapid recovery.

The bug bear of managing the medication times (while predicting what the day would bring in regard to achieving an acceptable balance) seems joyfully so far away, while each new day brings progress and the sense of recovering even more of my youth, as the spark up and waves ripple along old nerve ways, opening up the muscles with more vitality.

In the space of one month, the combination of BocowoA with the well-suited form in Physiotherapy, have provided the apparent gain of twenty plus years.

Well, how many folk even without Parkinson’s, can lay flat on their back, with their arms held straight (hands hovering over the thighs) and gently raise their head and torso upward into a sitting position? The last time I recall being this fit was in the 1980’s, when I knocked five out of six balls into the back of a five a side football net defended by Pat Jennings (International goal keeper for Ireland).

There are of course days in apparent contradiction to the claim of ‘active fitness,’ times when it outwardly appears things are just as bad or worse. This is when the brain is sapping all the energy necessary to reassign and reconstruct itself to the changes occurring in the body. The mind is willing but the body is weak, just as it feels like when recovering from a heavy bout of Flu. And I think it fair to say, that recovering from years of being ‘in decline’ will require some moments in meditative rest, as well as the usual nights sleep.

Knowing my personal history like the back of my hands, I have observed the reversal process so far, both physically and mentally; As the going truly reflects the way of manifestation, although not necessarily in the same chronological order, as the body heals to the building blocks of biological order, and one apparent major difference; in that the gain does not breathe the same sense in panic brought on by the shock factor of the earlier losses, when nerve ways effectively close parts of the body down, or indeed the aspect of hallucination (that occurs when areas of the brain normally associated to the role for the subconscious dreaming are commandeered to maintain different roles in conscious day time).

In all of this I know sufficient to say that, I still have a little further to travel before the full clean bill of health box can be ticked, but the level of partial control over the whole healing process is a huge personal assistance, provided those around you have a similar trust and faith, that the ill can and will be overcome with time.

As I write I am very conscious of the fact that I may not have found the total Cure; but a way that seems to suit, in arresting my current situation. I am equally aware that there are some people who are way beyond "the early onset stages" and more badly effected and in need of their current medical regimes; hence my reluctance to provide full details of the ingredients in BocowoA via this blog.

All I can do is openly invite a fresh approach to tackling the disease through sharing these thoughts, in the hope that something just as positive can arrive for others living in the hell of akin neurological disorders.

 

Sunday, June 9, 2013

In The Genes



In an effort to get my lively five year old daughter into her bed, I suggested that she should try to get her head on her pillow before her shadow did.

Of course this failed; resulting in a series of races, where I had to say who had won each time.

Realising my mistake, I thought it was a cool idea to say, "Now see if you can fall to sleep before your shadow does."

Well, that worked; for half a minute! Before my daughter jumps out of her bed, and wandered around the bedroom with her eyes firmly closed declaring "I win, I’m sleep walking."

When my joyful mirth for such humour and sight in intelligence waned, I was transported back in time to recall, how I thought the teacher was incorrect, when I was told (at a similar age) that there was nothing in the universe that was faster than the speed of light; especially when I was running around the school yard in the midday sun.


 

Sunday, June 2, 2013

BocowoA Breakthrough



While I write before the arrival of a more complete remission: As more nerve cells reconnect with apparent ‘corrected synapse,' and the shackles that bound and imprisoned me for so many years finally fall away. I am starting to realise the enormity and full potential that may be found in BocowoA.

I am mindful too; that as with any new discovery, there is a responsibility that comes with it.

I fully realise that every ill under the umbrella of Parkinson’s Disease, will no doubt have differing roots (relevant to the individual’s genetics and biochemistry) and treatments utilising BocowoA, may well require particular medicinal modifications and additions to suit each individual patient.

Given the journey I am experiencing, it also has to be said, that the assessment of each individual’s fitness and case history will play a vital role; Simply because, once the healing process has kicked off, the body takes over with its own autopilot.

There is no way to stop or stall the process, or indeed predict the overall outcome, as apparent Natural Dopamine, springs into increased production and action throughout the whole body.

Once the switch has been thrown into ‘On.’ All you can do, is to try and regulate measures in comfort; balancing the fluctuating shortfalls in Dopamine, by adapting the levels of Levodopa on a daily basis. It is certainly a rocky hard road, when nerve clusters suddenly awaken in large areas of muscle, and the ongoing demand gobbles up the current production and all the balance in reserves. As too; when reserves outweigh the daily demand and you have to cope with the aspects of overdose.

During the process, as more of the nerve ways opened, it came to a point where the prescribed medicines I was on, seemed to be making matters worse; While more healing speedily followed as the dosage was gently reduced (all be it perhaps restricted and hampered by the slow release aspect of the tablets). But before the drug companies start to panic, the two go hand in hand; and I can see new drugs being developed (for the regions around the world where BocowaoA cannot be provided as a fresh medicinal food).

Added to which, there is still no way of knowing whether BocowoA is the answer and the Cure. What works for one may not work for others, and I still have some way to go before all the receding symptoms finally go. Indeed, I may require additional or new medicines, to cement any permanence towards Complete remission.

In regard to other ongoing Research programs, and the strides being made towards eventually treating Parkinson’s with Stem Cells, for those who will require it. Perhaps BocowoA, and or its potential variants, may provide the means to ensure ‘corrected synapse’; So that these forms of intervention will be wholly productive, and accordingly cost effective viable treatments.

As I am not personally a neurologist or a scientist, I am unable to provide more in-depth knowledge regarding my discovery at the present time. However, all I can say is, that I believe BocowoA should become another weapon in the arsenal. For the fight to beat Parkinson’s will always be a Team effort.

Upon which note; I am eternally grateful for the assistance I receive from, my GP, the Neurologists, most importantly my Masseur Kinésithérapeute, and finally my family and friends supporting me along the way.

Thank you.